Parental Empowerment

Launching Early 2025

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We are excited to introduce our upcoming Parental Empowerment Programme, set to launch in early 2025. This programme is designed specifically for parents and carers of children aged 0-4 years who are at risk of developing a neurological condition or have a confirmed diagnosis. Our aim is to provide you with the knowledge, support, and community you need during this challenging journey.

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Programme Overview

The Parental Empowerment Programme consists of six comprehensive online modules that you can work through at your own pace. Each module covers a crucial aspect of navigating life with a child who has or is at risk of a neurological condition. These modules are filled with valuable information, personal stories from other parents, and links to resources that you may find useful.

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In addition to the online content, we will host group sessions between each module. These sessions offer you the flexibility to join in person or online, providing a space to discuss what you've learned, share experiences, and connect with other parents and carers who understand your journey.

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Module Breakdown:

1. What Does Diagnosis Mean?

   • Understanding your child’s diagnosis and what it means for your family.

   • Insights from parents who have been through the diagnostic process.

2. What Happens Now?

   • Guidance on navigating the early stages after diagnosis.

   • Practical steps and resources to help you move forward.

3. Support for Your Child

   • Information on available therapies, educational support, and more.

   • Videos of parents sharing their experiences with various support options.

4. Support for You

   • Focusing on your well-being as a parent or carer.

   • Tips on managing stress, seeking help, and maintaining your own health.

5. What Happens Next?

   • Preparing for the future, from next steps in your child’s care to long-term planning.

   • Ideas and strategies shared by parents who have been there.

6. What Is Our Story?

   • Information on supports available.

   • Inspiration from other families who have shared their stories.

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Group Sessions

Between each module, we invite you to participate in group sessions led by our specialist trainer—a parent with personal experience of raising a child with a rare condition—and a parent with lived experience. These sessions are a great way to dive deeper into the module content, ask questions, and connect with other parents.

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Who Can Join

The Parental Empowerment Programme is free and available to parents and carers in Scotland who have a child aged 0-4 years at risk of developing a neurological condition or with a confirmed diagnosis.

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How to Register

To express your interest in joining the programme, please fill out the registration form below. As the launch date approaches, we will provide you with more details on how to access the modules and participate in the group sessions.

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Why Join?

• Gain valuable knowledge and resources to support your child and yourself.

• Connect with other families and build a supportive community.

• Learn from trainers who have lived experience and truly understand your challenges.

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We understand that not all information may be relevant to you right now, but the programme is designed to be a resource you can return to whenever you need it. Whether you’re looking for immediate guidance or just want to be prepared for the future, the Parental Empowerment Programme is here to help.